User Manual for the PDQ-39, PDQ-8 and PDQ Summary Index

Crispin Jenkinson, Ray Fitzpatrick, Viv Peto
ISBN 1 874551 10 3

Summary

This report is intended as a reference manual for the Parkinson's Disease Questionnaire (which is available in a 'long form' (the PDQ-39) and a short form (PDQ-8)). The PDQ is a self completion instrument designed to address aspects of functioning and well-being adversely affected by Parkinson's disease.

The main points covered in this report are:

• an outline of the epidemiology of Parkinson's Disease;
• a brief description of the symptoms most commonly associated with Parkinson's disease;
• an outline of the development of the 39 item Parkinson's Disease Questionnaire;
• a comparison of results from the PDQ-39 with other subjective health and clinical outcome measures;
• documentation of the derivation of a summary index of health status from the PDQ-39;
• information concerning the derivation of an eight item measure of health status, the PDQ-8, from the PDQ-39 which can provide, with little loss of information, the PDQ summary index;
• a copy of the PDQ-39;
• a copy of the PDQ-8;
• a copy of the scoring systems for the PDQ-39 and PDQ-8.

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