Dynamic Consent Project
We are running a number of focus
groups as part of the EnCoRe
project to talk about ways that participants involved in research give consent,
and whether there are opportunities to improve this process.
We are developing a new system using
a Tablet computer that would allow patients and donors to give consent
electronically. We are hoping that this new system of ‘dynamic consent’ would allow
participants to monitor how their tissue sample and personal information are
being used and make decisions about how they can be used in the future.
project’s aims are:
enable business to adopt scalable, cost effective and robust consent and
revocation methods for controlling the use, storing, locating and sharing
of personal data.
benefit individuals by providing meaningful, intuitive mechanisms which
will allow them to control the use of their personal information held by
- To help
restore individual confidence in participating in the digital economy and
so, in turn, benefit the wider society.
Teare and Michael
Morrison are the Oxford researchers involved in this project.
EnCoRe Project Website
Patient information sheet